Share
Invisible Not Broken - Chronic Illness Podcast Network
Chronic Migraine Interview With Kevan From Made In California {Chronic Illness Podcast}
Sign up with your email address to receive news and updates.
Email Address Sign UpWe respect your privacy.
Thank you! An interview with Kevan, the owner of Made In California who suffers from chronic migraines.This week is near and dear to my heart, chronic migraines are not unknown in my house.We really went into the weeds on what it is like to being a student, female, and having an invisible and chronic illness. I really would love for more teachers and educators to listen there is a lot in here about things a child with chronic illness deal with. We also discussed isolation and chronic illness, technology and chronic illness, medical marijuana and migraines, pugs and other support and snorting animals, and the inspiration behind Kevan's business Made In California
When your chronic illness really and literally is ALL in your head
Migraines from age 5
what it’s like to have head pain all day
Some of the things a migraine contains not including headaches
What Can Trigger a Migraine: Trigger: sensory overload, weather, chemicals, foods
When chemicals and chemical scents trigger migraines and you can’t have scented products….start a business and MAKE IT BETTER
I will be ordering sooo many of these how can you beat the name? Naked and Unlaid?
Entrepreneurs and chronic illness
Technology, chronic illness, and life opening benefits
Living your life finding out what is still possible in your life and in the boundaries of your illness and finding a purpose
Chronic illness and isolation (think Yellow Wallpaper English majors)
Social media and finding your chronic illness community
Schooling impact on chronically ill children
the life and mental saving benefits of pugs
Choosing other paths than western medicine (We are NOT doctors don’t sue us, ask your medical professional for advice)
Medical Medium (Link)
Medical Marijuana, other herbs, and nutrition (which can mean salty fries and milkshake) for migraines
Riki Lake documentary Weed The People
More episodes
View all episodes
Vulnerability, Resiliency, and Advocacy with Tim Reitsma
47:06Monica Michelle is joined by consultant and podcast host Tim Reitma.Tim lives with Crohn's Disease.In this episode, Monica and Tim discuss: Tim’s resiliency through managing his Crohn’sThe importance of self-advocacy, especially in the workplace Tim’s podcast why he shares stories of those with invisible illness TIMESTAMPS00:47 - Tim's diagnosis 06:31 - How and why Tim applies self advocacy15:41 - Why Tim started his podcast22:42 - Invisible condition etiquette31:00 - What HR can do better for employees with invisible illness39:31 - Tools Tim uses to care for his Crohn’s outside the homeThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.comTech and Disability: What VR Offers the Disabled Community with Sunny Ammerman
01:10:27Monica Michelle is joined by artist and disability advocate Sunny AmmermanSunny lives with Septo-optic dysplasia, panhypopituitarism, Optic Nerve Hypoplasia, and is missing a membrane in the brain called the "septum pellucidum".In this episode, Monica and Sunny discuss: Sunny’s complex disorders and how she copes with themEverything VR provides from accessible gaming, social platforms and the potential for better online education.Various VR/AR games and their gameplay Sunny’s VR support groupTIMESTAMPS00:45 - What VR/AR offers for chronically ill and disabled folks11:57 - Sunny’s conditions and how she copes with them17:55 - Features that make VR games accessible or inaccessible as well as different games and their play experiences37:13 - The social aspects of virtual gaming51:32 - What opportunities VR has for the future1:04:49 - Sunny’s VR support group The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.comReporting on Chronic Illness and Disability with Journalist Julia Metraux
39:16Monica Michelle is joined by Journalist Julia Metraux.Julia lives with vasculitis, mild to moderate hearing loss, and has experienced long COVID.In this episode, Monica and Julia discuss: Julia's diagnosis with vasculitis and how it influences her journalistic lensHow community impacts the mental health of those with chronic illnessHow Julia and Monica find positives and negatives in the internet spaces for chronically ill and disabled folksThe politics of how government, businesses, and celebrities influence the chronic illness community TIMESTAMPS00:32 - Julia's diagnostic journey07:02 - Julia’s work reporting on the online community of chronic illness 16:32 - The effect of Internet communities on chronically ill and disabled folks26:46 - How Julia’s illness impacts her work, both in what she writes about and how she manages her lifestyleThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.comAuthor of “Pain: The Ultimate Mentor,” Physiotherapist Kevin Hunt
31:29Monica Michelle is joined by author & physiotherapist Kevin Hunt.Kevin lives with chronic pain.In this episode, Monica and Kevin discuss: Kevin’s philosophy of pain management as a physiotherapist who experiences chronic pain. The Hexagon Model, a life-management tool for focusing on what’s important to you.Kevin’s idea behind his new book.Using pain as a guide.TIMESTAMPS00:34 - Kevin’s work as a physiotherapist specializing in the experience of pain 06:44 - The Hexagon Model for managing your life’s needs14:00 - Putting aside the idea of a “quick fix”19:45 - Kevin’s personal experience with pain and how he uses it with patients28:44 - Kevin’s book, “Pain: The Ultimate Mentor”The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.comAuthor of “Through the Pain: The Silent Suffering & Triumph of a Personal Trainer”: John K. Frazier
28:35Monica Michelle is joined by author & personal trainer John K. Frazier.John lives with ankylosing spondylitis.In this episode, Monica and John discuss: John’s work as a physical trainer and authorChronic pain comparisonsPersonal triumphTIMESTAMPS00:50 - John’s business & diagnosis07:19 - Chronic pain olympics09:31 - Talking about & hiding a diagnosis15:09 - Personal triumph18:24 - Staying in the present23:29 - The superman complexThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.comThe Creative Process, Self Worth, and Dating with Disability: Laura Mustard
31:08Monica Michelle is joined by musician Laura Mustard.Laura lives with VATER syndrome.In this episode, Monica and Laura discuss: Laura’s inspiration for her upcoming musical EP.How Laura’s illness impacted her recent relationship & self-image.Laura’s creative process, new music, and social media pressure.TIMESTAMPS00:30 - Laura’s new EP / Monica’s recent COVID experience05:32 - Relationships with chronic illness11:20 - Image and self acceptance with disability15:32 - Laura’s creative process and current projects20:05 - Pursuing creativity despite social media attentionThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.comAuthor of “The Girlfriend’s Guide to Lupus”: Amanda Chay
30:43Monica Michelle is joined by author Amanda Chay.Amanda lives with Sjögren’s and Lupus.In this episode, Monica and Amanda discuss: Amanda’s book & diagnosisOutlooking on work & writingNavigating chronic illness with kids & familyTIMESTAMPS00:26 - Intro + The Girlfriend’s Guide to Lupus02:17 - Amanda’s diagnosis10:09 - Amanda’s outlook on writing17:11 - Navigating chronic illness with kids & family23:29 - Labels and roles26:24 - Flare reads & closing remarksThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.comAuthor of “Compass Points the Way”: Alexis Kline
23:14Monica Michelle is joined by author Alexis Kline.Alexis lives with Dysautonomia.In this episode, Monica and Alexis discuss: Being a sick teenagerHaving an isolated diagnosisProductivity workflowsTIMESTAMPS00:28 - Alexis’s diagnosis & dog07:18 - Sick teenager road map10:00 - Alexis’s book & workflow16:25 - Having an isolated diagnosis20:50 - Wildlife photography, purchases The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.comAuthor of “From the Sidelines to the Finish Line”: Emily Falcon
36:47Monica Michelle is joined by author Emily Falcon.Emily lives with ALCAPA.In this episode, Monica and Emily discuss: Growing up sickPost-surgery supportHaving a public bodySelf-motivation and adventuringTIMESTAMPS00:28 - Being a sick kid & Emily’s book title07:28 - Mortality10:16 - Portrayal of disability in media12:21 - Post-surgery support19:23 - Having a public body23:43 - Self-motivation29:46 - Emily’s tips for adventuresThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com